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Age Group
18-21
22-29
30-39
40-49
50-59
60 +
Marital Status
Married
Single
Divorced
Widowed
U.S. Geographic Location
Northeast
Southeast
Central
Southwest
Northwest
Not in US
If not in US, what country?
Sex
M
F
How did you hear about our Web site?
Searching
Recommended
Did you come to our site to gain information for yourself, or for another person?
Myself
Another Person
Your interest in the Site is as:
A Patient
A Practitioner
Just interested
For Patients and Non-dentists:
Have you participated in our interactive discussion group either by listening or through interaction?
Yes
No
Have you found the discussion groups helpful?
What day of the week would be the best time for you to participate in our discussion group?
Monday
Tuesday
Wednesday
Thursday
Friday
Saturday
Sunday
What general time of day would be the best for you? (Please use the Central USA time zone for this answer)
Early Morning
Midday
Afternoon
Evening
If Evening is best, which time?
6:00 pm
7:00 pm
Have you asked us for a referral to a facility knowledgeable in Lichen Planus?
Were you satisfied with the treatment you received from the site to which you were referred?
Was your inquiry answered by us in a reasonable amount of time?
Do you feel that the site is providing you with needed information and is overall worthwhile?
Undecided
Please rate your satisfaction level overall on the scale
Poor
Excellent
1
2
3
4
5
Which of the following would you like to see increased and expanded. Please indicate by using #1 as the most useful with consecutive numbers to follow. Educational materials on oral lichen planus such as journal articles. Health related material on nutrition, exercise and life-style. Stress management educational material. Psychological material such as optimism, coping skills. Most frequently asked questions with our responses. Practitioner's page with short publications contributed by theexperts in the field of oral lichen planus treatment. Other:
If you are the person who has been diagnosed with lichen planus, please answer the following questions. If you entered our site for someone else who has been diagnosed with lichen planus, please DO NOT answer the questions below. The diagnosed person may want to enter the site and answer the entire survey. Thank You.
Who is the person who monitors your lichen planus: General Dentist Pathologist Periodontist. Oral Medicine Dentist Oral Surgeon Ear, Nose & Throat Physician Other:
How often does this person check the Lichen Planus?(Please list in months:)
How long have you had Lichen Planus?
Recently diagnosed within the last year
1-5 years
5-10 years
10-15 years
15 years +
Do you have now, or have you ever had, the following conditions: Heart Problems Respiratory Diseases Gastrointestinal Diseases. Arthritis Rheumatism Thyroid Conditions Diabetes Blood Dyscrasias Neurological Disturbances Psychological Disturbances Allergies Nutritional Deficiencies Malignancy or Growth Other:
What medications are you currently using to control your Lichen Planus
Topical Corticosteroids
Please indicate which ones:
Temovate
Lidex
Diprolene
Ultravate
Others? Please list here, one per line
Anti-fungals (Yeast)
Systemic Corticosteroids
Please list: Please list here, one per line
Other Medications to control LP (please list)
One per line, please
N/A -- I use no medications to control my lichen planus
Do you have an oral yeast infection in addition to the oral lichen planus?
Have you ever had an oral yeast infection in addition to OLP in the past?
Was your Lichen Planus confirmed through Biopsy?
How many biopsies have you had of your original OLP lesions?
1 2 3 4 None Number if more than 4
Which of the following appear to make the Lichen Planus worse?
Certain foods
Stress
Toothpaste
Medications
Mouth Rinse
Flavoring Agents Cinnamon Peppermint Wintergreen. Spearmint
Do you have lichen planus on any surface areas of the body?
If yes, please indicate the location:
Arms
Legs
Scalp
Genital
Back
Chest
Have any other family members had any form of Lichen Planus (mouth or skin related)?
If YES, which family member(s)?
Children
Sibling
Parent
Aunt/Uncle
Grandparent
Cousin
Niece/Nephew
Spouse
Your blood type is …
A B O AB
Negative Positive
Unknown
Your Lichen Planus is ...
Erosive Reticular Don't Know
What brands of oral hygiene products do you use? Please List:
What educational information were your given concerning your oral lichen planus when you were initially diagnosed?
Extensive Moderate Minimal
From what sources have you gained information?(Check all that apply)
Public Library
Dental/Medical School Library
Dentist Physician Internet
Other (please specify):
Were you ever given any written educational materials on lichen planus?
For Women:
Have you been able to relate your Lichen Planus with hormonal changes?
At what point in the menstrual cycle do the lesions appear to become more apparent??
Before my period
After my period
At mid-cycle
I do not notice a change
I am post-menopausal
Have you ever had a biopsy for vaginal Lichen Planus?
If you have vaginal Lichen Planus do you have oral lesions also?
Have you ever been treated for vaginal:
Pain
Discharge
Discomfort?
What medications do you use for vaginal lichen planus -- please list:
For Dentists:
What is your specialty area:
General Dentistry
Pathology
Periodontics
Prosthodontics
Oral Medicine
Other
How long have you practiced?
Less than 5 years
5-15 years
More than 15 years
How many OLP patients do you have in your practice?
How many highly erosive OLP patients do you have in your practice?
Please Read BEFORE submitting form: Thank you very much for participating in this important survey. It will greatly help us in making this service better for you and all those who suffer from this condition. When you are sure your responses are accurate to your satisfaction, click the Submit button ONLY ONCE.
NO ONSCREEN ACKNOWLEDGEMENT WILL BE GIVEN. Thank you again for your participation. You are helping us in a much needed service.
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